The 42-year-old Chantal Beurskens wants nothing more than her family on the road, visit her friends or bring her 12-year-old daughter to an away game. But I can not. The Brabant has the disease HME MO, a rare genetic bone abnormality, and was also actually soft tissue rheumatism last year. She is in a wheelchair and can not move. Beurskens started a crowdfuncing. A wheelchair van to make a little 'just' her life.
The mother of two children do not know where she can go. All possible organizations and funds has sought, but still she received no reply. Therefore, she is the crowdfunding action started with the aim of 15,000 euros for a wheelchair bus, so they again "normal" may be a 42-year-old woman who is full of life with her family.
The Chantal residing in the Brabant village Berlicum worries all her life with the disease HME MO. Thereby grow benign cartilaginous tumors throughout her body. The knobs and hooks that occur provide pain and movement restrictions. By complications that arose from the numerous operations she underwent, she can not walk. Last year, the RA came again with that.
Just
The Brabant has lived in a rehabilitation one year to get back on its feet, but that did not work. ,, Now I'm back home with my family, which I so badly want to be, "said Beurskens.
She has her life finally a little on the ride, but 'just' is certainly not. ,, Just a word you use so often, but my life is anything but ordinary. Everyone goes example, without thinking to the toilet, but it costs me so much energy that I have to think about it. "
Preferably Chantal wants a wheelchair bus, so that it is no longer confined to her home and village. ,, With my wheelchair I can go to the supermarket and the physiotherapist. But cozy all together on Sunday to the woods with the dog, there is not for me. My husband can drive, but the car fits my electric wheelchair and I can not last without it. "
hammer
Chantal has a license. ,, I can not walk, but I can and can drive a car. The municipality and government insist there so that people with disabilities should participate in society. I want, but that is impossible. Money for financial resources is not there and you can go anywhere.The municipality can not help the health insurance either, the Ango-fund went bankrupt. I can through the town for a reduced price to take a taxi, but that is not an adequate solution.Then my children are to grandma and I'm still waiting for the taxi. "
Chantal claims to have its good and bad days. Afraid that she is not can no car driving over a few years. ,, Nowadays you can only drive with your hands, or even with one hand. Maybe I'm stubborn, but I will not give up. Although I am limited, I see opportunities. I believe in it, it has to succeed. I do not want to beg, but on the other hand, if I do not do or will never come true this very normal wish of me and my family. Despite my disability, I just want to 'normal'. I continue to fight. "
By: Editor's AD / Simone Zwienen / Photo: (Private Photo.)
Reactie plaatsen
Reacties